Partners Pediatric Multiple Sclerosis Center

 
 

Resources for Kids and Teens

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Introduction: 

      Because pediatric MS is not very common, most teens and kids with MS don’t know another kid with MS.  Other kids and teens can really help each other how to figure out how to live well with MS, and how do deal with problems when they come up.  The Pediatric MS Center, together with the National MS Society, tries to provide different types of opportunities for kids to connect with each other. 

 

Online Discussion Group For Teens

For Teens Only! An online opportunity to chat with teens who have MS. This monthly discussion group will be moderated by David Rintell, the psychologist at the Partners Pediatric MS Center. The chat takes place on the website MSWorld.org and a special code is required to log in.

Please contact David if you or your teen may be interested to aquire the log in information.

 

Email Group For Teens

The Network also connects teens through an email group especially for them. The group allows teens to "meet" other teens, share concerns and information, and develop a support network. The group is moderated by a National MS Society staff member. 

   

Online Discussion Group For Teens

For Teens Only! An online opportunity to chat with teens who have MS in the New England area. This monthly discussion group will be moderated by David Rintell, the psychologist at the Partners Pediatric MS Center. It is currently in the planning stages.

Please contact David if you or your teen may be interested. 

 

Publications

"Mighty Special Kids" is a booklet for children who have MS. It's a lively and entertaining publication which helps kids understand MS, treatments, suggests ways to talk to friends about having MS, family issues, and even includes some fun games. It is available online in an interactive version:

Mighty Special Kids Online

 

Teens Inside MS is a publication for teens whose lives have been affected by MS. This means teens who have a parent with MS, and teens who have MS themselves. Kaley Zeitouni, a teen with MS, writes a column in every issue. One useful column is "Talking to your friends about MS". It is also available online:

"Talking to your friends about MS" Column

   

SmileKeep S’myelin is a publication which was designed for kids who have a parent with MS.  Some children and teens with MS have found it to be a useful source of information, even though it was not written especially for them.  Click here to access Keep S’Myelin.Cool

 

 

 

Resources for Children and Teens with MS, Supported by the National MS Society

The National MS Society provides psychosocial and educational support for children and teens with multiple sclerosis and their families.


Available Resources

Kids Get MS Too: A Handbook for Parents Whose Child or Teen has MS* is an informational handbook containing a wide range of information pertaining to pediatric MS. The handbook was written by specialists in childhood MS.

Managing School-Related Issues: A Guide for Parents with a Child or Teen Living with MS* provides parents with the tools and resources to be their child's best advocate in the school system. The guide includes a discussion on the potential impact of MS in the school setting, recommended accommodations and modifications, transition issues, and sample 504 plans and request for academic accommodations.

Students with MS & the Academic Setting: A Handbook for School Personnel* is an informational guide for school staff working with children and teens with MS. The handbook includes a discussion on the issues children and teens with MS may face, recommended accommodations and modifications in the school setting, transition issues, as well as basic information on MS.

Your Education Rights as a Student with MS* Every person has a right to strive for his or her education goals despite having a disability. This brochure explains the differences in rights and responsibilities both for students and the schools they attend.

Pediatric MS Online Group for Parents connects parents through an online group where parents can share concerns and information. Please visit msconnection.org  to register and then search on Pediatric MS Online Group to get started.

Teens with MS Facebook Group is a place for teens ages 13-19 to connect with other teens living with MS to share experiences and offer and receive support. For more information on how to register, please contact Kim Koch (vice president, programs and services, National MS Society) at Kimberly.koch@nmss.org.

* These publications are available for download at http://www.nationalmssociety.org/Resources-Support/Resources-for-Specific-Populations/Pediatric-MS-Support-Network

Registration Information
For information specific to pediatric MS or to learn more about the resources available to you and your family contact an MS Navigator at contactusnmss.org or at 1-800-344-4867.

 

 

 













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