Partners Pediatric Multiple Sclerosis Center

 
 

Frequently Asked Questions

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1. Why did my child get MS?

   

At present, nobody knows exactly why MS occurs. MS is believed to be caused by a combination of environmental and genetic factors. No specific virus or infection has been shown to cause MS. MS affects people all over the world, however there are certain populations that seem to be more susceptible to developing MS.

 

2. What are the symptoms of MS?

   

People with MS can experience attacks of weakness in their arms and legs, numbness or tingling or episodes of dizziness. In addition, blurred vision, loss of vision or double vision may occur. Additional symptoms include chronic fatigue and bladder urgency. Sometimes cognitive difficulties and depression may be caused by MS. Some patients experience progressive or irreversible symptoms. Having these symptoms does not always mean that you have MS. Additional tests including an MRI scan of the brain, blood tests and sometimes a spinal tap (lumbar puncture) can help to understand the cause of these symptoms.

 

3. My child has an abnormal MRI, does this mean he/she has MS?

   

An abnormal MRI does not always mean that your child has MS. The diagnosis of MS is made by a combination of clinical symptoms, MRI findings and blood and spinal fluid tests. Sometimes it takes several months of monitoring clinical and MRI findings in order to make a diagnosis of MS.

 

4. Are there different forms of MS?

   

There are several different forms of MS. The majority of children with MS experience relapses or attacks which occur periodically. In the beginning, these symptoms or relapses generally go away by themselves. This type of MS is called relapsing-remitting MS. If left untreated, many of these patients will go on to develop secondary progressive MS, in which symptoms do not go away. Some patients have a progressive course of MS from the onset, and this is called primary progressive MS. MS is an unpredictable disease, and patients can have a wide variety of symptoms or relapses. MS differs from person to person.

 

5. Is there a cure for MS?

   

There is no cure for MS at present. Because we do not yet know what causes the disease, it is difficult for scientists to design a cure. Despite this, there are treatments available that lessen the severity of disease, and help many patients live full lives.

 

6. What are the treatments for MS?

   

There are two major categories of medications available for the treatment of relapsing-remitting MS. These drugs help in prevent the long-term effects of MS.

 

The first is called Beta-interferon. Beta-interferons are cytokines that are normally produced by the body. They have been found to have protective effects on the immune system. There are three commercially available Beta-interferon drugs:

    1.  Avonex (Beta-interferon 1a); given once a week by intramuscular injection

    2.  Rebif (Beta interferon-1a); given 3 times a week by subcutaneous injection

    3.  Betaseron (Beta interferon-1b); given every other day by subcutaneous injection

 

The second category of drug for the treatment of relapsing-remitting MS is called glatiramer acetate (Copaxone). This is a synthetic drug that is designed to look like the myelin coating in the brain and acts to make the white blood cells more benign.

There are additional drugs which may be used if the above drugs do not work or are not tolerated. If your child has an acute attack or relapse, intravenous steroids will help with recovery. Your doctor will help you to choose which drug is best for your child.

 

7. What happens when I come to a Pediatric MS Center?

   

Pediatric MS Centers are designed to specially care for children and adolescents with MS. Doctors that have detailed knowledge of the available treatments will care for your child. In addition, your child will be offered evaluation by a neuropsychologist who can help to assess cognitive function, and will interact with your child's school system to ensure that appropriate educational measures are taken. In addition, a psychologist and social worker will be involved in your child's care. If your child experiences a relapse, physical therapists will help with your child's recovery. Additional services and doctors are available as needed.













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